Yes, today is my anniversary. It is not an anniversary someone would want to necessarily celebrate, but today is the day I was diagnosed with Crohn’s Disease, and that was nine years ago.
I never would have thought I could have made it this far, and I’ll be honest, on April 4, 2008, I really felt like my life was over. I was so sick I could barely pull myself out of bed, and when I did pull myself out of bed, I was in constant pain—a pain unlike any I had ever experienced before—or since.
A year later, and after trying several medications, my condition was still out of control, so my doctors sent me to Philadelphia to see an expert in the field of gastroenterology. This doctor saved my life. Okay, I may be exaggerating, but she definitely saved my sanity and my livelihood. I am in remission now, and I have her to thank for it.
On May 5, 2010, she started me on Remicade infusions. Remicade is considered a chemotherapy drug and it is administered through an IV infusion. I won’t go into the hows and whys of this medication, but it works for me right now, and it has given me my life back. For seven years now, I have received these treatments every two months.
Now, I am beginning a new chapter, and I thought I would share it with my readers. Three weeks ago I had a port-a-cath placed in my chest. After seven years of IV infusions, my veins are no longer easy to access. On the recommendation of three doctors, I went ahead and agreed to have the port placed. I will receive my first infusion through my new port on Saturday. I’m not sure what to expect, but I think my new port will bring with it a sense of freedom. I have to stay on Remicade to remain in remission, so I see the port as a necessity.
Since I now have a port-a-cath, I have to wear a medical ID bracelet. I received a silicone bracelet along with a card to keep in my wallet from the hospital right after my surgery. But the bracelet is gray and bland and boring. I needed something more fashionable. So I found myself an Etsy seller who makes bracelets for ID tags. Here are some of my bracelets. I have to wear my bracelet every day, so I need a bit of variety—and a little bling doesn’t hurt either.
This last is a special request. I asked Michele to make me a bracelet with a Snow White theme--poison apple and all. Isn't it lovely? You can visit Michele's store here. She makes medical ID bracelets, but you can have any of her designs made into a regular bracelet.
And here is a fun fact about April 4. It is also Robert Downey, Jr's birthday and that just makes it a great day all around.